"When we listen, we learn. When we share our experiences, we benefit". We have learned so much about HIV/AIDS treatment from the people we have spoken to in this initial project of Listening to Those Who Live It. Our original sample of participants was generated from asking our friends and acquaintances to share their experiences with us. As part of taking this project forward, we would love to expand the number and variety of voices around the world that have something to teach us.

Listening to Those Who Live It

Treatment Stories Toolkit

We believe that the power of listening cannot be understated and that we have so much more to learn from the stories of HIV+ people and their carers. In the process of listening to more experiences, we hope to have a greater body of information that will help us answer the questions posed in the introduction of our Nine Lives publication.

For those of you who are interested in helping us develop this work, we have produced a Toolkit that will provide a framework for you to carry out your own Listening project, using the same format that we have used. In return for using our Toolkit, we ask that you pass on copies of your work to share through this website and our library so that we can continue to document the realities of living with HIV/AIDS for positive people and their carers throughout the globe.

In the Toolkit, you will find:

  • Consent Form

    This form explains about the project and asks that the interviewee consents to being interviewed and sharing their story with TICAH.

  • Questions for HIV+ people

    This form shares the questions that we have compiled with our friends and colleagues and used as the basis for our Listening interviews with HIV+ people.

  • Questions for Carers

    This form shares the questions that we have compiled with our friends and colleagues and used as the basis for our Listening interviews with care providers of HIV+ people.

  • Open Copyright Policy

    To facilitate translations/ adaptations of our materials, TICAH has an Open Copyright Policy. This means that we will grant permission without charging any permission fees, royalties, etc. to translate/ adapt our materials so long as you adhere to the conditions outlined here